About That Transplant….

Went to the lung transplant doctor today.  The people there were so nice and very helpful.  The doctor explained to me that I would have to lose about 50 pounds in order to qualify for a transplant.  That kind of sucks because this disease is what caused me to gain 60 pounds in the first place, but it is what it is.  The other problem is that I haven’t been a former smoker long enough.  You have to be off the cowboy killers for at least 6 months before they will even consider you for a transplant.  That also kind of sucks because the docs all tell me that my smoking had nothing to do with the disease.  But again, it is what it is.

All of this is actually moot because I don’t want a transplant.  And once I explained myself to the doctor, he understood my stance on the whole thing.  He was a very nice man and very helpful.   He had a social worker come in and speak with my wife and I to make sure that we have all of our ducks in a row, legally and medically, when the end comes.  Which I found out today is probably coming sooner than we originally thought.

Anyone who has been following this knows that I have said that I am getting worse.  That it’s getting harder to breath.  I am just going to keep moving forward and try to be here as long as I can.

According to the lung specialist, that will probably be about 6 months or less.


About sammy311

Diagnosed with UIP (Usual Insterstial Pneumonitis) on September 1, 2011 and given a 50% chance at a 2 year survival. I started this blog to let future people diagnosed with this disease know what to expect from diagnosis to the end. I probably won't update every day, but I will try to keep a going log of my condition, both physically and emotionally, as often as I can. Information like this seems to be almost non-existent on the web, or at least difficult to find.
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3 Responses to About That Transplant….

  1. April says:

    Don’t know what to say. Just sending you some love.

  2. Deanna says:

    Same here I don’t really know what to say except that I am thinking of you and wish I could see you. Sending my thoughts, and my love to you and your family. Miss ya.

  3. Tri says:

    My prayers are with you. I hope you don’t mind but I believe in the power of prayer and I have listed you through for prayer warriors to keep you in prayer and for a miracle to come forth in your life. Here are some scriptures to help you during this time:
    “The Lord is good; His mercy is everlasting …” (Psalm 100:5)
    Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers…3John 2.
    He Himself took our infirmities and bore our sicknesses….Matthew 8:17

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